Tuesday, June 09, 2009

MMS for CFS

MMS, or 'Miracle Mineral Supplement' is a water purifier being used to self-treat a variety of infections and chronic health problems. There is plenty of discussion now on the web about the use of MMS and based on many reports MMS can be helpful for Lyme and also for CFS. However, after some experimentation with MMS I have learned that the standard MMS protocol does not work well, what helps me is to use a very low dose pulsing strategy. Here is what I have learned.



MMS appears to be a very powerful self-treatment for infections of all type, the active ingredient is Clorine Dioxide, a powerful anti-microbial. This is a report of my experience with MMS, and not a description of the chemistry or story of MMS. If you do not know much about MMS, I suggest you go to Jim Humble's website and get his free eBook (Part I), or go to other MMS sites, particularly the documentary video site. There are also several videos on YouTube about MMS.

Initially, I followed the protocol suggested in Jim Humble's eBook, and worked up my dose by adding a drop or two each day. When I got to about 9 drops I started noticing some pretty strong symptoms. Then I had a problem measuring a dose, and added a few extra drops, I believe I had about 12 drops that day. The resulting Herx 'knocked my socks off.'

Apparently, taken in the larger doses suggested for malaria and other serious conditions MMS can make people with CFS quite ill. Presumably this is from the huge die-off, or Herxheimer effect, my symptoms from the larger doses were consistent with what I have experienced many times as die-off or Herx.

The improvement in my overall symptoms was quite noticeable, in particular I usually experience a boost in my energy levels, and that lasts through much of the day. In particular, I can tolerate more activity, even some low-level physical activity with less post-exertion malaise. This is perhaps a 15% improvement in energy and activity levels for me, and that has persisted now for about a year. I still have had some low periods and sick days, but overall, MMS has been a consistently positive experience. A few hours after my morning dose, I feel really good, like a neurological release of endorphins of some sort. I have no idea what that is, but it has happened many times several hours after a dose. This is similar to what I have read about with Rife and Magnetic Pulser self-treatments with some people with Lyme. So maybe the MMS was acting strongly against the Lyme. Hard to say.

Anyway, here is where I have ended up. The larger doses just are way too much. The detox from the herx becomes unbearable after a few days at 5-6 drops. And I have noticed that when I take regular days off MMS, lower doses produce a productive herx and give me just as much energy boost and 'good feeling' as daily higher doses, but without as much herx detox problems.

So, right now I am just taking 1-3 drops of MMS about 4-5 times per week. On the off days I must take Vitamin C in the mornings, that seems to help the adrenals become less depleted during the day. This seems particularly important as Vitamin C can not be taken close to an MMS dose.

Here is an example week:

Sunday - 1 drop MMS
Monday - 2 drops MMS
Tuesday - off day, take Vitamin C and mineral supplements
Wednesday - 2 drops MMS
Thursday - 3 drops MMS
Friday - off day, Vitamin C and mineral supplements
Saturday - off day OR 1 drop MMS

Every Day - probiotics or active yoghurt (8-12 hours after MMS, so in the evening usually)

Every Day - self-talk and occasionally other herx-management self-treatments (
see my previous blog posts)

This protocol can and does at times produce mild herx-type symptoms, so a person using MMS for CFS/Lyme should be prepared for that. I continue using many of the same herx self-treatments I have used for years, and written about previously. This includes self-talk, which I find helpful when the herx gets bad sometimes. The herx from this CFS MMS protocol seems delayed, sometimes it hits 8 hours after the dose, and sometimes it hits 24-36 hours later. I have not found any particular pattern to that, except that with the lower dosing the herx is more tolerable if and when it does hit.

One more important observation, when I was first experimenting with MMS I was not taking any days off, and I started having non-herx symptoms that I recognize from past experimental treatments I have tried as mineral depletion and possibly depletion of other resources. So I make sure to take days off every week and supplement with extra minerals at times, and that seems to allow me to tolerate more long-term use of MMS. I have read of people taking the higher doses suggested for serious illnesses for months and even years without breaks, they obviously do not have CFS. So I believe people with CFS need to be very careful with MMS, taking lower doses and pulsing.

One other comment, I was studying the Marshal Protocol (Benicar & pulsed low-dose Minocycline against biofilm bacteria colonies) at the time I was first experimenting with MMS, and I learned that a few people have completely recovered from CFS using the MP (this is a subset, many have not had that improvement). So the MP influenced me to try a low-dose pulsing approach. Here is the reason. MMS produces
Chlorine Dioxide (ClO2), which is the 'active' antimicrobial in the treatment. While studying the industrial uses of ClO2 I learned that ClO2 is used in industrial applications to destroy biofilm bacterial colonies! Well, as the MP is targeting biofilm bacteria infection, this interesting fact made me curious about using an MP style protocol of MMS for CFS. The hope was that low-dose pulsed MMS, which seemed to work for me, might be breaking down some of the biofilm bacterial colonies being targeted by the MP.

I have been using MMS on and off for about a year now. The use of regular probiotics, occasional vitamin C and minerals, and self-management of the low-level herx that results all seem very helpful. There have been no negative effects that I can discern, but I am not sure that the improvements are as dramatic overall as some other people claim for their illnesses. Some people are saying that you must take MMS morning and evening for CFS, I have tried that a little, and experimented with evening dosing for awhile. There was some sleep improvement after taking MMS at night. However, I could still only tolerate a cumulative dose of 1-3 drops 3-5 times per week. So I could not take doses morning and night and decided that the increased energy during the day was important and I have stayed with morning doses. I may be a highly sensitive person because I have read that other people using MMS for CFS are taking a dose morning and night.

After a year now I will continue to take MMS in the morning, roughly following the protocol outlined above. One last observation, on the off days I mostly just rested at first, but I am now noticing an occasional immune activation that differs from a regular herx on the days off MMS. So perhaps the MMS is helping the immune system become activated now in some important new way. Time will tell.

Overall, I am very impressed with MMS. Based on my experience MMS does help CFS and possibly Lyme. However, for people with poor detox, like most of us with CFS and many with Lyme, smaller dosing and a more conservative schedule than what is recommended by Jim Humble and others promoting MMS seems to be important.

7 Comments:

Anonymous Anonymous said...

I tested positive for XMRV in the Whittemore-Peterson study and have troubling neuro-endocrine symptoms. I take Benicar for my BP, Propranolol to slow my heart, glycopyrrolate to control sweating, and Robaxin for pain and muscle cramps. The WP people also put me on LifePak Nano, resveritrol, artimesinin, and fish oil. My GI problems resolved, I gained back 20 of he 30 pounds I lost, and I'm back in the gym and even sometimes on the tennis court. What's in MMS? I'd hate to double up on what I'm taking; some of it can be toxic in high doses.

December 13, 2009 at 2:21:00 AM EST  
Blogger Kurt said...

Hi Anonymous,
That's great to hear of such improvements. MMS is a glorified water purification chemical. The active ingredient after you mix it is a form of chlorine, just like what is used in swimming pools and public drinking water. However, this is a more active form of chlorine, called chlorine dioxide. It is considered far safer for consumption because it does not produce the carcinogenic forms of chlorine molecules that ordinary chlorine can. However, it is very strong and WILL kill a lot of bugs quickly, producing some oxidative stress. So you must be able to deal with the detox. Higher doses of MMS can produce some monstrous 'herx' or detox reaction. That is why I use only very small dosing as I have CFS and do not detox well.

At this point I have ended my primary MMS experiment, I took MMS for a little over one year, maybe 14 months. And the improvement was real, but there did not seem to be much continuing progression past the early improvements. Maybe I just could not get the dose high enough, hard to say. Anyway, I have not abandoned MMS and still keep it around and use it from time to time for some symptoms that I learned it helps with. And MMS in the morning (a small dose) seems to help my adrenals throughout the whole day. Probably I only take it once or twice a week now, and some weeks skip it altogether. Maybe it works against some of the bad bugs, it seems to.

I can not predict how MMS would work for you but you seem to be doing well with the WP treatments. And MMS does not interact with any supplements I have tried, except I needed less adrenal support and a little more detox support when taking it regularly.

I have not heard any reports of interactions with drugs, but I would take it at least 30 minutes apart from anything else. Literally taking MMS is a bit like drinking (clean) swimming pool water, except the form of chlorine is safer. And you have to avoid Vitamin C for a few hours after a dose, as Vitamin C will deactivate MMS.

Good luck!

December 13, 2009 at 1:34:00 PM EST  
Blogger Kurt said...

Here is an Update in Jan, 2011... After stopping MMS for awhile I have started on a multi-B12 protocol. That is detailed in a later blog post here. At the current time, I have been on multi-B12 for six months and have had a consistent improvement, to the point I am working again part-time (from my home) and am able to go out more and drive again, etc. In order to attempt further improvement, I am currently starting to use Chlorine Dioxide (MMS) again, but this time using the latest recommendation from Jim Humble. That is to take low doses, 1-3 drops, every few hours during the day. So far this is working far better than before, I believe the combination of multi-B12 and the strong antimicrobial may be important. The most noticeable effect is improved sleep, when I take one or two drops at night. I'll report more later in a full post, after I see how far this can take me...
Best wishes to everyone!

January 31, 2011 at 12:52:00 PM EST  
Anonymous Anonymous said...

How are you doing these days, Kurt?

Tracy

June 18, 2011 at 2:42:00 PM EDT  
Blogger Kurt said...

Tracy,
I'm doing better thanks, right now I am not taking MMS every day, and have started a new protocol for nitric oxide (NO) management that seems to do the same thing the MMS was doing. This suggests to me the MMS had some type of unknown gasotransmitter effect, because the NO treatment that is having the same effect is helping manage a gasotransmitter (NO). So you might say things are in flux a bit here while I attempt to figure things out a little better. If you are curious about the NO treatment, it is based on the work of Dr Bell and Marty Pall, PhD, email me for more details.

June 18, 2011 at 2:49:00 PM EDT  
Anonymous Wayne said...

Hi Kurt, thanks for your postings on MMS, a subject I have a strong interest in. I was wondering what you think about Kerri Rivera's use of MMS for children with autism, including her own? Sounds pretty impressive.

Best, Wayne

February 6, 2014 at 1:07:00 PM EST  
Blogger Kurt said...

I agree, that sounds impressive. I would love to see a controlled study using MMS or CDS for a group of people with a diagnosed condition.. Even if it were conducted in Mexico. We need some science in my opinion. For now though it certainly helps.

February 6, 2014 at 3:54:00 PM EST  

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