This update is long overdue. Although I've commented on comments over the past few years, there have been no new posts. Because there has not been much change, not much to say. I am still using many of the same treatments I've discussed, and my functional level is maybe a little less due to aging a decade, but no dramatic change there either. As far as supplements, there have been a few new developments. One is that over the past few years I have been making a daily rehydration drink, taking it morning and night. I will summarize the supplements I am currently using.

The rehydration drink has been the major change over the past years since I was maintaining this blog. The drink is based on a W.H.O. formulation to help third world patients battling dehydration due to cholera or other dehydrating diseases. This is a simple formulation, basically boil a handful of rice in a large pot of water, and add a tablespoon of salt. I am using sea salt (Actually 'Real Salt'), and cook them together. For about the last ten years I have made this weekly, usually in a pot. Recently I started using an Instant Pot pressure cooker, which is easier to cleanup, does not require watching, and is done in an hour or less. 

Here are more details, in simplified form, of the daily supplements I am taking for this strange illness: 

I am taking no pharmaceutical medications at the moment. In the past Lorazepam and Propanalol have been somewhat helpful, but I found it too easy to become dependent, and too many side effects. But I have to be careful to watch my stress levels, and track my blood pressure now and then, and I do use those meds if I really need them. But most of the time I don't. 

I've probably tried hundreds of of supplements over the years, but most do little. However, some supplements do help. Some meditation type self-treatments also are helping. 

So here is a categorical list of treatments that have helped the most. And I have been using most of these daily for years now.  

Methylation Support (B6, B12-hydroxo & methyl forms, Methylfolate, Magnesium chloride, Vit C),  

Mitochondria Support (d-Ribose, Goji Berry), 

Antimicrobials (too many to list, most used is olive leaf extract, grapefruit seed extract and oregano oils),  

Calming / Sleep aids (GABA, l-theanine, relora, bacopa, hemp seed, inositol, cacao in the morning),  

Aminos (goat milk protein, quinoa), 

Rehydration (Real Salt / sea salt, rice broth, cinnamon), 

and finally, the last item is not a supplement, but it is just as important. I am also focusing here on lowing my own stress thermostat, which is primarily:

Brain Rewiring (Ashok Gupta Program, the holistic approach in Dan Neuffer's ANS Rewire book, Nicola Bird's Anxiety Self-treatment Program). 

So that's it, the update, after nearly a decade. I will try to write another post sooner next time. 

I have tried to focus the last few years on understanding the complexities of this illness, and am thinking over how to explain how I believe we do not actually have a primary pathology, but rather a cluster of dysfunctions that contributes to a core set of symptoms... hopefully soon I'll write on that.